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Released on 2025-09-17

Longitudinal European Autism Project (LEAP) - Clinical - Time point 1 & 2

Accession number
ELU-2-B8FB71-1
Description
Clinical questionnaire and interview data (self and/or parent reported) at LEAP T1 and T2.

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Version
1.0
Created on
2025-06-01
Updated on
-
Experiment types
Human subject data
Type of Samples Collected
Demographics IQ Medications Socioeconomic Autism Diagnostic Observation Schedule - 2nd Edition (ADOS-2) Social Responsiveness Scale - 2nd Edition (SRS-2) Child/Adolescent/Adult Social Behaviour Questionnaire (ASBQ/CSBQ) Autism Quotient (AQ) Repetitive Behaviour Scale - Revised (RBS-R) Short Sensory Profile (SSP) Attention Deficit Hyperactivity Disorder Rating Scale (ADHD DSM-V) Beck's Anxiety and Depression Inventories (BAI/BDI) Development and Wellbeing Assessment (DAWBA) Strengths and Difficulties Questionnaire (SDQ) Vineland Adaptive Behaviour Scales - 2nd Edition (Vineland-II)
Number of Samples Collected
713 (varying depending on measure and timepoint)
Diseases in samples
Autism Intellectual disability ADHD (co-occurring)
Treatment or experiment categories
Clinical/behavioural phenotyping
Size
552 KB
Dataset file formats
docx md tsv txt
Number of files
-
Checksum Algorithm
-
Data owner
-
Main contact
Tony Charman
Email
tony.charman@kcl.ac.uk
Affiliation
KCL

info Constrained permissions

Use Condition Remarks Category (GA4GH)
Data can be used in Biomedical and linked research only. Limited scope of research. Is data consented to be used only in specific research/disease areas? E.g. use only in Biomedical Research. Other Research-specific restrictions (RS)
Approval is provided on a case by case basis by the LEAP Project Review Committee, following submission of a proposal. User specific restrictions Is the use limited to approved users/groups/institutions? User-Specific restrictions (US)

thumb_up Permissions

Use Condition Remarks Category (GA4GH)
Data can be used outside of the originating project. Use of DATA is limited to the RESEARCH PROJECT. Is the use of data limited to the project named in the Submission sheet? Project-Specific restrictions (PS)
No Are there any Intellectual Property (IP) restrictions/requirements when using the DATA? IP claim terms (IP)

hardware Obligations

Use Condition Remarks Category (GA4GH)
Acknowledgement of AIMS-LEAP as the source of data, the AIMS funding sources, and the role of ELIXIR Luxembourg is required. Please see LEAP Data Access Policy for more details. Publication requirements Are there any requirements in case of publications based on the DATA? E.g. papers should cite the cohort study. Publication Required (PUB)
Any results and further derived data obtained from AIMS-LEAP data will be returned to the AIMS-LEAP group, accompanied by all necessary metadata, so as this data would be interpretable by other researchers. These files of research results (which will be clearly marked for provenance) will in turn be available to other researchers who apply for AIMS-LEAP data. The AIMS-LEAP group will not audit these data for quality control: instead the fact that they are available for review by other researchers should result in an effective form of peer review. If such derived data are included within the AIMS-LEAP own database the origin of the data and the means by which they were derived will be clearly flagged. Data return requirements Is there a requirement to return data or documents to the database/resource? Return data to database/resource (RTN)
The USER INSTITUTION ensures that the DATA USER agrees that his/her personal data (at least his/her name, contact details, title and home institution), information on the RESEARCH PROJECT (comprising its abstract and the PUBLICATIONS) may be posted on the AIMS-2 TRIALS Website. Other use restrictions (Other)